Yesterday turned out to just be a busy day. We got going, finally did get the kids dressed :) They had lunch, went down for naps, then the exciting stuff started happening LOL. The med supplies guy came with an "oxygen compressor". Yep, it's this huge heavy box that is used to continuously produce O2 instead of having to use tanks that need refiling. He brought stickers for her face to keep the nasal cannula in her nose, a few more cannula- including 2 'infant' size ones since that's what we used at the hospital but they'd sent us home with 'pediatric' ones based on her age... He also brought two new leads for the monitor. They're the little sticky things that wrap around your finger or toe and glow. It plugs in and measures the heart rate and the oxygen level. Anyway, all stuff we needed, except no extra tanks. So Monday I'll call and have some more portable tanks delivered. After all, we live in FL and if the power goes out then we end up with no oxygen from this machine. Also, if we have any sort of evacuation I'm not sure that this huge machine would fit in our car, so we'd need tanks to bring with us. So... I'll call Monday for those things. It's nice we live in the US where we can pretty much count on having electricity for the most part, but in FL in thunderstorm season it does go out periodically for an hour here or there, and the fear of a hurricane taking it out for a few days is also a possibility!
Ok, about 20 min after he left I heard Emma beeping! I'd monitored her during nap but at the hospital she'd been OK during naps so I didn't immediately put the O2 on. Well, she was beeping from SATS, not HR. Weird. So I let it go a bit and she started alarming again. Her sats which are usually 93 and up even when sleeping were 87 and kept bouncing back down there. So I hauled the machine into the back room where she naps and I hooked her up, used an infant cannula, yay, and went back out to lay down myself. Then she alarmed again. I went in to check on her and the cannula was IN HER MOUTH and she'd CHEWED THROUGH IT! UGG! Aparently that wasn't working. So I grabbed the pediatric one again- didn't want to ruin both the infant ones in the first 20 minutes we have them! and I grabbed the stickers to keep the O2 on her face. I set her all up (amidst crying, poor thing) and went back to lay down. ALARM. She won't keep it on!
So... WHAT DO I DO??? How do you get a young child that just finds it irritating to keep the oxygen on?? I had it snug to her nose, pulled it farily tight with the stickers, wrapped it around the ears and under the chin and tightened it there. No matter what she pulled it down into her mouth and chewed on it! The pediatric cannula is a thicker material so I'll stick to that for a while until we figure this out, but I did try using the infant one she'd mssed up and cutting the prongs off it completely to just let it blow by her nose- a friend said they do this for their daughter. No luck, she still pulled it into her mouth to chew on. I gave her a bib, she likes to chew those, and another chewy toy and left her with those in her mouth. Ten minutes later I answered the alarm and found the tubing IN HER MOUTH. Any ideas??? There's no disciplining her, really. I told her no, put it back in her nose, tapped her mouth said "NO" firmly, but hey, that's about it! I don't want her feeling like she's in trouble and the O2 is a punnishment... I'm at a loss!
She fell asleep really late yesterday for her nap and even in her sleep would rake it down into her mouth. Covering her hand won't work, she either uncovers it or just does it with it covered. By the time we got her up from nap (it was almost 6pm!) I was going crazy with the O2, and she still was having low SATS which is not something she's had in the past very often. Yes, the pulse ox is working fine- we tried it on Mike and I! And we tried going back to the O2 tank instead of the compressor thingy and it was the same. So her SATS really are lower (maybe because she's more active at home??) and the O2 is NOT staying in her nose.
Any thoughts/suggestions? Does anyone else have a little one on O2 that's old enough to figure out how to get it out at all expense and yet young enough to not understand that they need to leave it alone???
I slept most of the night and kicked Mike out of bed ot answer the alarms. Then I slept on the couch until 10. Then I went back to bed until 11. Have I mentioned that I love my husband dearly and he's the most wonderful Daddy in the world? Ah... now it's 11:30, I really should get the kids dressed LOL.