tag:blogger.com,1999:blog-1855066593161369056.post2497238176355758072..comments2023-09-27T11:22:05.849-04:00Comments on Cornish Adoption Journey: Now what?Meredithhttp://www.blogger.com/profile/07974293935380325338noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-1855066593161369056.post-48513596740438452982008-06-29T01:02:00.000-04:002008-06-29T01:02:00.000-04:00I don't have a whole lot of experience with O2 and...I don't have a whole lot of experience with O2 and kids, but I know a lot of older adults who don't breathe in/out through their nose, and so they put the tube in their mouth so that they're actually getting the Oxygen. Any chance that's what she's doing? Good luck!Erinhttps://www.blogger.com/profile/08207645660071772531noreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-78080476663712702582008-06-28T15:20:00.000-04:002008-06-28T15:20:00.000-04:00I'd ask - does she absolutely need it? My son wou...I'd ask - does she absolutely need it? My son would always pull it out, and in retrospect I can see that he DIDN'T need it.Anniehttps://www.blogger.com/profile/12623179886908222942noreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-36237599533025139832008-06-28T14:35:00.000-04:002008-06-28T14:35:00.000-04:00Ask the "Oxygen Man" (which is what our oldest cal...Ask the "Oxygen Man" (which is what our oldest called our o2 delivery guy) for lots of extras. (they'll give 'em to you, including the tanks) YOu can also call them over the weekend and they'll deliver if you have to have it.<BR/><BR/>Use the tape. Check at CVS/Walgreens. They have really good stuff and tape it from her nose to her ears. You might could get it on her at nap and keep it on her (Just disconnected) so that you only have to tape it once a day. Also, try the infant socks on her hands so she cant get the fingers up under the hose.<BR/><BR/>Definitely do get the extra tanks because our compressor burned out, plus like you said, with evacuations or power outages, it could be a problem. <BR/><BR/>Also tell the cardio, since they may want to monitor it more or move surgery up or something like that.<BR/>Good luck.<BR/><BR/>JanAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-10507173172649880082008-06-28T14:12:00.000-04:002008-06-28T14:12:00.000-04:00Ok, what about "No-No's". They're what kids wear a...Ok, what about "No-No's". They're what kids wear after they've had facial surgeries so they don't mess with their wounds. It's a splint that you put on their arms so they can't bend their arms to their face. They're easy to take on-off. They're not the most pleasant thing, but at least she couldn't mess with the tubing! My friend's daughter had many surgeries to repair a cleft lip/palate, and she always had these on for several weeks after surgery, even while awake and running around.Leah Springhttps://www.blogger.com/profile/02326240393099112570noreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-91233717810949434982008-06-28T13:25:00.000-04:002008-06-28T13:25:00.000-04:00I know it can be a huge pain and it's not healthy ...I know it can be a huge pain and it's not healthy for her but I find it extremely cute how much spunk Ms Emma has. If she doesn't want to eat then she won't! and if she doesn't want something in her nose, well she is going to do everything in her power to make sure it isn't! That baby girl is a fighter, wait until her teenage years :)<BR/><BR/>*praying for Emma and her Mommy*Marlohttps://www.blogger.com/profile/00382022168518664228noreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-60030803052582701552008-06-28T12:55:00.000-04:002008-06-28T12:55:00.000-04:00Dom wouldn't leave his alone one hospital stay eit...Dom wouldn't leave his alone one hospital stay either and we ended up doing 'blow by' o2 for him and keeping his sats ok for him- he typically runs between 96-98 healthy, and when sick, 94-96. it was enough to keep his sats high enough- i can't remember Emma's range of normal right now....do you think that would work?<BR/><BR/>Still in our thoughts and prayers!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-39447843512696175192008-06-28T12:50:00.000-04:002008-06-28T12:50:00.000-04:00When Josiah needs O2, we have to tape (with medica...When Josiah needs O2, we have to tape (with medical tape, try a few different kinds, some are stonger than others, but some leave more irritation) the canual from the edges of his nose all the way to the ear, becasue if he can get even one finger under it, he pulls it off. We also put it around his head rather than around the ears and under the chin, and then tape the tubing to the back of his neck so that he can not get at it easily. Also run the tubing under the edge or the crib matress so that the shortest piece you can is the only thing in the crib. One night in March, he refused to have it on, but every time her went to sleep his Sats were in teh low 80's, so waht we did was technically a waste in some ways, but did help some. We got him to sleep, layed him on his side, and put the end of the tubing in front of his nose area, taped to the crib sheet and turned it on at double or tripple the rate that he would have had it if he was werign th cannula. His sats were not perfect but were above 92 , and he was so exhausted that he did not shift position for most of the night. So that might be a last ditch effort. His sats tend to run low when he is sick, so anythign above 95 is good for him. His alarm is set for 85, lower than most people, but he does run low a lot, so that is what his pulmonary doc wahts it set at.<BR/><BR/>As for the montior, we are having a lot of trouble with that lately (we only use the O2 occassionally, but we monitor every night). We usually put the probe on his big toe, and then put an exta piece of medical tape from the end of the probe tape around the ball of his foot. Then we tape the wire in two more places on his foot, making sure the tape goes all the way around the foot and overlaps itself. Just make sure it is sung but not tight. Then put on a snug fitting sock. Winter works best with feety pajamas with a hole cut in the heel for the wire to go through, but in the summer, especially in FL I would imagine that you would not be puting her into any pajama suits. As it has been hot here in NY, we ahve been having issues with him taking it off at night as he has been sleeping in a onesy. We have had trouble with Josiah wrapping himself up in the cord lately, so we usualy wrap the cord around a couple of crib slats now so that we do not have a lot of slack. And lately I have been getting up in the middle of the night to put it back on becasuse he manages to get it off. But we have has some sucess with the above procedures. <BR/><BR/>We are keeping Emma in our prayers, and hoping that she will find a way to tolerate the O2 and probe, and that you all will be able to get some sleep.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-25916169024785133972008-06-28T12:35:00.000-04:002008-06-28T12:35:00.000-04:00Have you tried putting the cannula/tubing on backw...Have you tried putting the cannula/tubing on backwards?<BR/><BR/>I'm not sure I can describe what I mean, but I'll try...<BR/><BR/>Put it on her face with the little tubes in her nose like usual. When you get to her ears, don't loop it around and down to her neck, leave it behind where she can't get it.<BR/><BR/>I don't know if that would even work because I've only seen it done on babies who aren't very strong, and the tubing at her nose will still be there. Even with the stickers it probably won't work but maybe it's worth a try...Anonymousnoreply@blogger.com