This morning Emma was still intubated but it had been changed to a C-PAP setting which means that it gives her little bursts to help her breathe deeper but she was breathing on her own. She got really uncomfortable, was trying to cry, gagging, wiggling, scratching her legs, popping her knee out... she was miserable for about 45 minutes. That was a LONG 45 minutes! During that time her RAP (Right Arterial Pressure) went up, she started holding her breath so the C-PAP switched back over to backup ventilator and the other monitors alarmed with apnea. The nurse paged respiratory to come extubate her and it took a little while but finally they did get the vent out and she is MUCH HAPPIER without it!
Overnight the morphine caused her BP to drop some and some other stuff moved around but she recovered. They'd given her a half dose to start with anyway so they are trying not to give her any more morphine. They did know it was a possibility since she'd had a questionable episode after the T&A but... the thing we originally thought was an episode after the T&A we found out was just the way she is when asleep... so we don't think the morphine caused it. They were still cautious and did have some reaction to it so we're trying Toradol instead and hoping that will keep her comfortable.
Now she's resting comfortably and happy to have the tubes out of her face. They took the NG suction out of her nose at the same time just to let her get good and comfy for a while and relieve her throat for a bit. Plus... it was going to come out with the vent tube whether they wanted it to or not ;).
They turned her pacemaker down to 80bpm and she is maintaining 100 on her own! Prayers that she would overcome the pacemaker and that she would come off the vent are answered! Emma is a fighter and is doing great! I'm on Mike's laptop but will post pic's later.
We have two nurses today because one is transferring from the adult cardiac ward at Tampa General and is getting her footing for pediatrics. Both are great though. Also, a nurse came in this morning with two little teddy bears and left one for Emma. When she came in to say hello we knew exactly who she was, and she remembers Brianna too :) We've met probably 10 nurses that we know already and I'm glad we brought a few pic's of Brianna when she was here for her surgery 2 years ago. We also have some pic's of the kids now and have left them at Emma's bedside so the nurses can peek.
We're so proud of our little fighter and glad she's overcoming all odds and recovering so well. She still has a rough road to travel, but is well on her way! Thank you for continuing to pray for Emma!
Michelle- Spinoza is singing away to her and telling her stories while she sleeps.
RK- her baby legs are helping keep her from scratching her legs up when she gets upset.