Wednesday, July 30, 2008

The blessing and the curse

The blessing is that last night I *FINALLY* got new pulse-ox leads. Now we can tell how Emma is doing. This would be after not having any since Thursday during the day. We moved Emma to our room and have been getting up every 30 min-hr to make sure she has her O2 on. I'm very glad we got the leads, and last night when her O2 levels went down we were alerted rather than having to wake ourselves.

The curse is that last night I got new pulse-ox leads. Now we can tell how Emma is doing. Oh, wait, it's the same? Yes, now we know how Emma's doing. We know she's running 88-89 during the DAY. Up to maybe 94 as a high but generally high 80's. Her alarm has gone off every 15 minutes since she got up this morning (alarms at 88). She hasn't gone below 88 though, so I guess that's good still. (edited to add... strike that... try 86. Looks like she may be on O2 during the day by the end of today.)

It's amazing to me how one piece of exuipment can make such a big difference in how we live life. For instance at night last night I still wasn't able to sleep through the night because, well, let's face it I was up every 30 minutes for 5 nights and my body says "CHECK ON HER" and so I couldn't just put it out of my mind and sleep soundly. Then there's the fact that we really haven't known how much O2 she needed this past 5 days and had it set at 3/4 liter/hr (prescribed amt was 1/2 but we knew she was having trouble still on that amount and was always needing 3/4 or 1 lph). So we've just had it set at 3/4 this past 5 days. Good news is that is what she was on all night and did just fine on it-- when she had her oxygen in.

This past few days has been busy but good. We've visited with 2 of my aunts, 3 uncles, 1 sister and 1 SIL, my parents, Mike's parents, his grandma and his aunt, and Mike's cousin's son. A bit of a flurry of activity and now we've got a little "down time." Tonight is speech but otherwise I'm free to go to the post office, the store, to put away clothes, attempt to pack a bag for E and I to go on Thursday (and Sun if I can manage it), clean up a few pieces of the house that are needing some attention, and do all those other little fun things that you do on a day when nothing is planned out.


  1. Thinking of you during this stressful time. Just a few more days and she will be 'fixed'!


  2. Meredith,
    Still praying. Thanks for all the pictures of your kiddos. They are so cute.

  3. Praying for a more restful night.

  4. Meredith,
    Can you see about getting a night nurse? Insurance would likely cover it if the doctors order it.

    Even if it was just for a couple of nights it would be so good for you to have a full night's rest.

    Praying for high sats, AND restful sleep, even if it is interrupted,


  5. Meredith,

    We have been praying several times a day for sweet Emma, I have asked my firends to ass her name to their church prayer chains.

    My hopes and prayers are with Emma and all of you right now.

  6. sorry I have been so little help lately. We're praying and we love our little princess lilac. Call if you need me tomorrow. Love, Mom

  7. Many prayers. Please try to get some rest. I don't know how, but I am worried about you!