I just talked with the surgeon's office and they said that they reviewed the brain MRI films and that there IS brain damage, but looks like it's old so nothing he's going to worry about. (they were worried about active lesions because of her extensive heart and lung issues.) They WILL progress with surgery!
AND... I told the lady that Emma's sweating profusely, in further failure, her sats are dropping badly at night, and she's already on O2 may be upping the amount. Also, she's on the max meds that the cardiologist is comfortable giving her at her size and that I wanted him to be aware that she's not just "staying the same" but is slipping further into failure. The person I spoke with actually sounded concerned (a good thing) and is calling Dr. Q to find out if he's going to move it up. She asked me if I had a preference of hospitals and I told her if he could do it at the other (he operates at 2) I don't care, we just want her to have her chance. She also said that another surgeon has an opening TOMORROW. I said, well, if Dr. Q wants the other guy to do it I don't care, I just want her to have it fixed, so let me know what he says. She's got my cell # and is going to try to get him today. He leaves in 10 days for 2 weeks. So it's either SOON or our set date on August 14th.
I'd PREFER our doctor- if it means waitng too long, well... that won't help. PLEASE pray for God's guidance on the surgeons today as they decide whether they'll do her surgery in the next 10 days or whether she'll continue to wait for August 14th. God's Will... That's all I ask that you pray for. Oh, and a little comfort for Mom and Dad would be great too :)
I'll update when I hear anything more. Hopefully I'll hear something today but knowing this office... it may be a day or two before I hear back.
We will pray. That is the best thing. God will sustain her until he is ready for the surgery. She is such a blessing to all of us who have seen her grow and develop in the past few months.
ReplyDeleteTammy
I will be praying, Meredith.
ReplyDeleteI am praying too, Merideth!
ReplyDeleteWe are praying for this special angel. We are praying for your family also. Emma has touched so many lives. She is a true blessing.
ReplyDeleteRobyn
I really don't know what to say so I will tell you I will be praying for everyone involved in this situation.
ReplyDeletePrayers from NJ
ReplyDeleteMay God sustain her!
oh my goodness, huge prayers, no matter how this turns out, you got to her in time, you understand?
ReplyDeleteI hope that you can feel the prayers of many coming from all of the country. (((HUGS))) to you and Miss Emma.
ReplyDeletePrayers sent her way. Keep us posted. Tomorrow would be very soon- huh!
ReplyDeletePraying for sweet Emma, & also her mama & daddy
ReplyDeleteYou have our prayers too.
ReplyDeleteJan
I'll be praying for sweet Emma and her mommy and daddy too!
ReplyDeleteI'll be thinking of you all, and especially little Emma!
ReplyDeleteMeredith- I will say many many prayers for Emma and yourself. Lots of Hugs and Prayers,
ReplyDeleteHeidi and Ashlie
Lord you know the BEST outcome for Emma. Please intervene on her behalf. She is loved by so many and especially by You. Give her strength and peace to her family who is waiting ever so anxiously for an answer for her.
ReplyDeleteI will be praying for all of you...especially precious Emma.
ReplyDeleteI'm praying too!
ReplyDeletesending some prayers!
ReplyDeleteKeeping you all in our thoughts and prayers. Keep us updated!
ReplyDeletePraying here as well...
ReplyDeleteFavor and wisdom for the doctors on behalf of Emma, this is what we are praying for. Strength for today and tomorrow. Hope and faith to sustain.
ReplyDelete