This morning I woke up early, got all 4 kids up, dressed, and somewhat fed, had my mom pick up Brianna at 8:45 and Mike's mom come to watch the boys at 9 and was out the door by 9:15! An hour and 15 minutes later I arrived right on time to the cardio office in Maitland.
We did the echo, which I'm so proud of my girl because about 1/2 way through she realized it wasn't going to kill her and she stopped crying and just kindof held her breath on and off and looked at me and squeezed my fingers. What a long way she's come!
An hour and a half after THAT (OUCH!) we saw the doctor. It's a good thing I really like this cardio, because that is a LONG time to wait for her to show up. Seriously. She wasn't at the office until then.
Anyway... She took a look at the echo, a listen to her back, and a listen to the Momma. Basically, as we knew would happen, Emma is showing further signs of failure and needs the repair QUICKLY. How I wish we could put life on hold for her for an entire month and all the sudden it be August 14th instead of July 14th! But, no, we've got one more month from today for her repair. Her profuse sweating, lack of activity, and her SATS dropping are all a result of her additional shunting which is caused by the heart failure.
There is a little good news and some light at the end of the tunnel though... Dr. N said she believes that the T&A surgery DID IMPROVE HER PH and that it seems that from that aspect things look a little better! YAY! Also, she seems to think that Emma won't be in the hospital nearly as long as the other cardio suggested. More like 2 weeks (with no complications) not 6+. I hope she's right!! I'm guessing the 6 weeks was including needing additional support. Plus, the people that told me that are the ones that weren't sure she should have it repaired, so they are likely expecting more problems than our regular cardio is. Regardless, I count this as good news!!
And... in other news... Happy Anniversary to my love... Today we've been married for 7 years :)