First our prayer request: Emma's heart cath will be tomorrow, Monday, at 9am. They'll be doing 3 different diagnostic tests and expect it to take around 2-3 hours. Provided there are no complications she will be released from the hospital about 6 hours later and we will return home. We should hear the results and interpretations before her release and have a scheduled surgery date (if she is a candidate for surgery) tomorrow.
Now... today... :) Today I was told by one very surprised cardiologist that my child has beat out all odds in several different ways and is amazing! Didn't we know that though? :o)
Here's the short(er) story- as I understand it right now. Of course as with all things each day brings new understanding and I may change things tomorrow :)
Emma's oxygen saturation levels are at 94-97% AMAZING!!!
Her heart is NOT VERY ENLARGED! Especially after having 5 yrs of damage.
Her heart pressures HAVEN'T REVERSED as should be the case with pulmonary hypertension and large defect for this long of a period of time.
The cardiologist actually asked us whether we were sure of Emma's birthday. Emma's size, condition, and defect all would be much more in line with a younger child. She said several times that this is such an unusual case to have a child with Down syndrome and an unrepaired AV canal that is in such good condition. We know God's been watching out for Emma and SO MANY have covered her in prayer. I can't wait to read the next chapter of what He's going to do with her life.
Mike left a few minutes ago to go to the store and get more baby food, diapers, wipes, and a photo printed. Then he's going by the post office to send our kids' registration to the Ukrainian Embassy. After that he's off to Orlando for his class tonight. He should be back to the RMH in Tampa around midnight. It will be a long afternoon and night for us all!
Ok, I said I was going to keep it short(er). How's this?
Mike diapers photo post school
Me crazy 2 kids no car
Tomorrow early cath wait
Bria K with grandma ok
I Need A Nap :)