We made the decision before meeting Daria that if she will make it home we will bring her home and we'll worry about getting her heart fixed after that. So I need the help of all those cardiac momma's! We will be bringing her home, but we need advice on whether she will need additional medication and whether this could be a life-threatening trip for her. I will be taking pictures of an EKG and attempting to send it home for Mike's Dad (can you do that for us Cecil? :) ) to contact our cardiologist and get more info from them too.
Ok, so here's the info we have, mostly as translated through our facilitator who does not have any medical background...
Daria's heart issue is with the Mitral Valve. The right side of the heart is enlarged because of the issue with the mitral valve. She has a higher pressure in her lungs but it is stabilized due to medication (not rising, but already elevated). She is on "glicositis" group meds for lung pressure and Digoxin which is to "strengthen the muscle and prolong the time of the muscle that relieves the heart". We were given another paper which, roughly translated, says "combined hypertrophy of miocardic of the right lower part, right upper part, and left upper part. Disorder of circulation inside bottom part".
If anyone can make sense of this please let me know! I have that paper (untranslated) and will be taking digital pictures of it and an EKG they gave me to send on. I just want to know if she will make it home without issue. Then we will do what we need to from there. I just don't want to endanger her further by taking her on a plane.
Thank you all for your continued prayers. I will post more (lots) next time, but this time was unprepared for posting. Daria is smiling and LAUGHING with us and was so happy to be able to go back out with us when we thought we had to bring her back. It is so sad though to see her so hungry. Today she was grinding her teeth a lot and was sucking her three middle fingers so hard. We are sure she was hungry. It breaks your heart! Tomorrow we will bring something with us and we will ask if we can give her something to eat. Maybe some baby food or some little crackers. She has a full mouth of teeth but they feed her nothing but a bottle of mixed gunk (meat, egg yolk, milk.. EW) every 4 hours or so. I'm sure a lot of it is water too and she is 5 yrs old and HUNGRY. I'm sure that attributes a lot to her size.
Ok, off to read the 67 replies to the past two days :) You guys are awesome :)
We are doing well, settled into an apartment with a kitchen, and enjoying visiting with the kids :)