Of course we are sleep deprived on a semi regular basis whenever one of the kids is sick or gets into a hard waking schedule... But this is a whole different level of sleep deprivation! In two different ways, actually.
In general, we are having difficulty getting any good sleep because Wesley is needing to be repositioned about every 20-60 minutes all night long... No matter what position he starts in, after an hour max he wakes up stiff and crying. It's sad that he is so uncomfortable! And when he isn't uncomfortable and can be calmed with just a quiet word or hush, he is just in that wake cycle and won't go back to sleep without reassurance that we are right there. In other words, he's spoiled :).
Not much we can do to undo that right now since he sometimes really is needing attention... So we grin and bear it. We have been taking turns on who sleeps on the couch in the family room where we have moved his bed to and that person is on duty for a majority of the night unless they get to a point that they just can't do it and need to sleep more. The other of us sleeps in our room with the bathroom fan on and monitors off so they can sleep and not hear him fuss. For now it's working, but goodness... I'm tired!
In addition to that kind of sleep deprivation, tonight there's a second type going on. Wesley is allowed no more than four or five hours of sleep tonight in preparation for his EEG tomorrow mid morning. In order for that to happen, we had to keep him up late and will be waking him at the normal 6am. Yes... That means he just fell asleep about 30 minutes ago and yes, he's already woken up once to be repositioned...
We have had a bunch of doctor's appointments this last week or so and school appointments as well. Between that and my own sleep deprivation it's hard to find the time to write about it all... Except for at 2am when woken up by a sleepy crying little man!