Unfortunately, things didn't go as we hoped. The good thing is that he did ok with the anesthesia and they were able to do a muscle lengthening/tendon release in his groin muscles which will help with diapering and seating and maybe even supported sitting one day.
The not so good part is that they determined that his hips are so far degenerated that they are unable to be relocated, even with the intense process that they had planned to do with breaking the femur and restructuring the hip joint.
It absolutely breaks my heart that the surgeon said to us "it's just a matter of getting to him too late. Had we done this when he was 3 there would be no issue recreating the joint."
For Wesley's future this means that he will never walk and due to how far out there hips are and how far up they are from the sockets, he likely will not bear weight , especially as he gets bigger.
Despite the fact that the loss of activities means a lot for his lifestyle and, I won't pretend it doesn't matter... Ours too... The kicker which has me is that as he grows he will experience pain from the hips based on the way they are right now. The doctor's solution is that we "treat the pain as it comes".
I am immensely sad for Wesley and my prayer is that we will be able to learn his cues for pain and he be able to better communicate with us so that the pain doesn't go untreated...
As for right now, Wesley is in a half spica body cast down to his knees and up to his chest. He has to be transported laying down in our vehicle which not only will he hate, but it means we are a two car family and will have to lean on the support of others to get our kids to and from school since we can't put all our kids into one car for the next 3-4 weeks.
And even more immediately, he had blood in his urine all night but it appears to be clearing up. No idea why that was... He is still on major pain meds and if he is awake he is crying and his heart rate is going over 180 pretty much every time anyone walks in the room or touches him. He is also still on 1.5 liters of oxygen... So coming home today (original plan when they did only the soft tissue surgery and not hip reconstruction) doesn't look like it's a possibility.... Been a long 24 hours and we really appreciate your prayers!