tag:blogger.com,1999:blog-1855066593161369056.post2488771898563716884..comments2023-09-27T11:22:05.849-04:00Comments on Cornish Adoption Journey: Down Syndrome and EatingMeredithhttp://www.blogger.com/profile/07974293935380325338noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-1855066593161369056.post-48350087255015088532008-10-04T20:43:00.000-04:002008-10-04T20:43:00.000-04:00Well, Potato salad as her first real food is a fir...Well, Potato salad as her first real food is a first. Remember David's was pizza crust. So one of us will set her a place at the Thanksgiving table Ha! Love MomAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-39668221010901735912008-10-03T10:07:00.000-04:002008-10-03T10:07:00.000-04:00Way to go Emma!!!! Jonathan had a fededing tube fr...Way to go Emma!!!! Jonathan had a fededing tube fro 3 yrs. and then had it out for41/2 yrs. He just recently got another MIckey button. Not because he has eating issues but because he has trouble gaining weight and keeping it on. In June he was 46pd...now he is 50pd. He gets 4 cans of Pedisure pumped through in the night. Also because of his low weight he couldn't walk fast or run, now he is starting to be more active, we still have a long way to go. So, happy Miss Emma is eating!!!!Laurahttps://www.blogger.com/profile/16460398988175758818noreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-61757586816988175172008-10-03T09:03:00.000-04:002008-10-03T09:03:00.000-04:00Do you think that oral sensory issues can also pla...Do you think that oral sensory issues can also play a part in Micah and Emma's feeding problems? I know that oral sensitivity due to lack of stimulation (proper feeding) can occur in institutionized kids as well. Do they mind if you brush their teeth and get into their mouths in other ways? Also, would specialized feeding therapy help them (although Emma seems to be progressing on her own!)? I know that the oral movements involved in eating solids are associated with speech development. Not like you have enough to do:)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-8394832622908248302008-10-02T23:06:00.000-04:002008-10-02T23:06:00.000-04:00When you wrote of Emma's sampling potato salad a c...When you wrote of Emma's sampling potato salad a couple of days ago, I predicted that her menu would rapidly increase - but I NEVER would have foreseen this marvelous progress!<BR/><BR/>How wonderful for Emma - not only is she starting to eat more normally, but she's not only willing, but actually interested in sampling a variety of foods! <BR/><BR/>Thanks for helping me end my trying day with a smile (tanking Wachovia stock, plus a very sick kitty - at the vet's all last night and most of today, but finally better). It's great to learn such wonderful news!<BR/><BR/>Best wishes,<BR/>Susan in Ky<BR/>Cousin to two from Ukraine (and nurse to a convalescent cat)Susanhttps://www.blogger.com/profile/15603705858506536170noreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-40200318975725323912008-10-02T22:57:00.000-04:002008-10-02T22:57:00.000-04:00Did you find out if the WM brand of Ensure has the...Did you find out if the WM brand of Ensure has the top for a nipple? I got asked that questions today by a friend from church. I giggled a little and told her I would find out! :)Sharihttps://www.blogger.com/profile/04554314908015066118noreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-31163391261836802332008-10-02T22:49:00.000-04:002008-10-02T22:49:00.000-04:00well, that's just AWESOME!!! go EMMA!!! :)well, that's just AWESOME!!! go EMMA!!! :)Jaimiehttps://www.blogger.com/profile/03813757609656165402noreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-89131735642279872012008-10-02T17:50:00.000-04:002008-10-02T17:50:00.000-04:00Oh, this Mommie has tears of joy for you! Go Emma!...Oh, this Mommie has tears of joy for you! Go Emma!Sharihttps://www.blogger.com/profile/04554314908015066118noreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-31264805242885524532008-10-02T17:26:00.000-04:002008-10-02T17:26:00.000-04:00Way to go, Emma!Way to go, Emma!Rachelhttps://www.blogger.com/profile/17712196987563805854noreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-14364424125926617952008-10-02T17:14:00.000-04:002008-10-02T17:14:00.000-04:00Go Emma!!Go Emma!!gillianhttps://www.blogger.com/profile/16388843035018332740noreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-77243324032191175572008-10-02T16:46:00.000-04:002008-10-02T16:46:00.000-04:00Way to go Emma!There is a big correlation between ...Way to go Emma!<BR/><BR/>There is a big correlation between the ability to sit up independently and the ability to take in "solid" food (anything other than liquid). With typical kids, it so happens that they learn to sit about the same time baby food or table food is introduced. With the delayed development, many babies with Down syndrome don't yet have the muscle coordination to manipulate food in their mouths successfully. Frequently, waiting until a baby/child can sit will help with the eating. <BR/><BR/>Oral motor skills and strength play a HUGE part in eating difficulties. Normalized eating patterns are directly correlated to good articulation down the road. The stronger the jaw, the more retracted the tongue, the better lip closure, then the better the speech is. It certainly is possible to have clear speech without oral feeding, but it takes a lot of work for most kids.Bethhttps://www.blogger.com/profile/10092198491274193931noreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-7094297114622776632008-10-02T16:09:00.000-04:002008-10-02T16:09:00.000-04:00All right Miss E.! It's so exciting when they mak...All right Miss E.! It's so exciting when they make progress isn't it?June Bergerhttps://www.blogger.com/profile/01611299565251107517noreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-12279894942752537292008-10-02T15:04:00.000-04:002008-10-02T15:04:00.000-04:00WOW! I'm so excited for you. I know it's still a l...WOW! I'm so excited for you. I know it's still a long was from totally eating but at least she wanted to try. I really thought you were going to say you were kidding by the time I read chocolate chip cookie....glad you didnt!<BR/>Way to go Miss Emma....eat more for Mommymy familyhttps://www.blogger.com/profile/00965034997906612228noreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-80860841798994985082008-10-02T14:57:00.000-04:002008-10-02T14:57:00.000-04:00Actually, I think the incidence of babies with DS ...Actually, I think the incidence of babies with DS having no desire to eat is kind of common. I've known an awful lot of kids over the years who were like this. It's just that years ago they didn't survive. Now, with a simple feeding tube, they do. Angela had a feeding tube until she was 3 1/2. It was initially put in after a nissen fundoplycation to stop severe reflux. However, after several bouts of aspiration pneumonia we later discovered she was also aspirating ALL liquids so she had to re-learn how to drink safely.Leah Springhttps://www.blogger.com/profile/02326240393099112570noreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-78522502896376161282008-10-02T14:46:00.000-04:002008-10-02T14:46:00.000-04:00Yay Emma. No turning back now. Next comes the ha...Yay Emma. No turning back now. Next comes the hamburgers and french fries!<BR/><BR/>Sawyer nursed from day one but didn't have enough energy due to medical problems to get his calories from that. So he had an NG tube. At about 4 months we also started him on baby food via a spoon. At about 8 months, my oldest son said "Mom, Sawyer can eat cheerios". I said, No he cannot. He said, Yes he can, I just gave him some. And thus he started eating cheerios. My first born (typical) son never took a bottle. Went from getting liquids via breast feeding to straws. Our other 2 were adopted at 16 months and 18 months. They were already using cups. So I have 4 children and never used a bottle to speak of. <BR/><BR/>JanAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-1855066593161369056.post-36958232565572686322008-10-02T14:34:00.000-04:002008-10-02T14:34:00.000-04:00BIG congrats to Emma!! WOW- what progress. With ...BIG congrats to Emma!! WOW- what progress. <BR/><BR/>With us, Max would not eat after he was born. He would not latch on to breastfeed and would not take a bottle. That only lasted about 3 days then he could drink a bottle down (with some overflow out of his mouth). Finally 3 1/2 months later he figured out how to breastfeed. So I pumped that long until he got the hang of it then became a pro at it. Solid food wise- He is very picky (and he's 7 yrs now). I'm not sure if it's because he was my first child or because that is just him. I think I waited too long to let him really explore solid foods (a little over a year old) so maybe that's part of it.JennyHhttps://www.blogger.com/profile/01016390364789296413noreply@blogger.com